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Anyone about for a chat 
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Joined: Sat Jan 30, 2010 11:20 pm
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Location: Kent, England
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Post Anyone about for a chat
I've not been on for a while again. Life just seems to take over. Things here not been going in my preferred direction.
My neighbour had a massive heart attack, died twice, major heart surgery, put into a coma then didnt come round proper from it,further surgery done. Was so worrying. Still he finally did come round and is now home, still recovering, but home now and I believe mending well. Meanwhile my eldest daughter, who was pregnant with twins but lost one had her 20 wk scan and they were told the baby has a connection in the front of the brain missing and fluid on the back of the brain and dialated kidneys. Referred to London. 2wks and 2 trips to St Thomas' later, their scan confirmed and they've offered her to terminate. She's had MRI done. Tomorrow was supposed be results day but they've rung my daughter and cancelled. She's now 23 wks. We're all left in limbo. I do so hope bubba will be ok I dont want my daughter to terminate and nor does she but she wants to know exactly what the chances are. Going by ordinary scan they said 30 to 50% chance of learning difficulties and thats ok she can cope with a slow child but that was before they saw the fluid and the size of his brain being so small this is why the MRI results are so important. If they say baby forever she wont cope not with 5 other children at home too and I fear she'll terminate but I know my daughter will so regret the decision of she has to make it as she so wants this child. Please would everyone pray and send healing energies to this little unborn.

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We are all the colours in a bubble. We all pull in different directions if the bubble bursts then someone let go, dont let go we need to be together to be whole.

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Tue Sep 04, 2018 9:22 pm
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Joined: Fri Aug 07, 2009 10:14 pm
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Post Re: Anyone about for a chat
Will do lisa.


Wed Sep 05, 2018 10:10 am
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Joined: Sat Jan 30, 2010 11:20 pm
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Location: Kent, England
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Post Re: Anyone about for a chat
Thanks Pete, Slight update. The sonographer rang her the day that meeting should've taken place. He was pushing again for her to have amniocentesis. She declined. Then the neurologist rang. The connection box in the babies brain is definitely missing, the fluid is too much but not excessive 'yet'. He said amnio test was pointless. Wants her to have a further scan at 28wks which will be Oct 8th. He doesnt see an issue with the motor nerve and as baby moved alot while MRI was being done he said either he could hear and moved or he felt vibrations and moved either way he moved so thats a good thing. After that the midwife from St Thomas' rang and told Toni not to do the amnio test as she'd be 24 wks that week.So thats where we at waiting for the next scan and hoping he carries on growing to the right size for age and that the fluid doesnt increase but that is where she has to make her decision. Keep praying please

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We are all the colours in a bubble. We all pull in different directions if the bubble bursts then someone let go, dont let go we need to be together to be whole.

Love, Life and energy to you


Mon Sep 17, 2018 8:42 pm
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Joined: Sat Jan 30, 2010 11:20 pm
Posts: 301
Location: Kent, England
Are you ordained by ULC?: Yes
Post Re: Anyone about for a chat
Just to update.
As of 13th Nov 2018 St Thomas' consultants still seemed to be pushing for my daughter to terminate the pregnancy saying he'd be stillborn, or be blind, deaf, need oxygen and ventilator to breathe, need to have a feeding tube and be cathetered permanently and if he survived birth his kidneys would fail within the first few weeks and due to the fluid in his brain could suffer endless seizures. Again my daughter declined the offer to terminate so they said they'd bring him on two weeks early.
Well my grandson was induced two weeks early, born on 19th Dec 2018 weighing in at 10lb 1oz. Alive, breathing on his own. One of his kidneys has returned to normal the other, after further tests, was found to have a faulty valve and this as yet is unchanged, he has had antibiotics daily since birth in order to stop any infection from stagnating urine in that kidney. He has never needed a catheter, nor a feeding tube as he looks and acts just like any other new born. The fluid in his brain is as yet not causing any issue due to it sitting where the soft spot is so as yet there is no pressure on the brain itself. He has yet to see urology or neurology as both these appointments are this month. He feeds 4 hourly as any normal baby and drinks from a normal baby bottle of around 5 oz of formula milk. His weight this week 11lb 14oz. So though not out of the woods yet he has exceeded the original prognosis from the earlier consultants.
Please do still keep him in your prayers and send him healing though as he does still have a long way to go.

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We are all the colours in a bubble. We all pull in different directions if the bubble bursts then someone let go, dont let go we need to be together to be whole.

Love, Life and energy to you


Fri Feb 01, 2019 8:41 pm
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Joined: Wed Aug 19, 2009 10:55 pm
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Post Re: Anyone about for a chat
I don't do prayers. But I wish your baby well. We are all avatars and we all have our part to play. I hope he plays well. It may be important in the great scheme of things.

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Sat Feb 09, 2019 5:31 pm
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Joined: Tue Sep 22, 2015 9:44 am
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Post Re: Anyone about for a chat
I'll pray for recovery and a return to full health.


Fri Feb 15, 2019 2:13 pm
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